WITH ONE BREATH 2012
Betting on a Cure...
When Paige showed dramatic weight loss at a clinic visit in January, we were sent home with a blood glucose monitor to see if CF-related diabetes (CFRD) was the culprit. We were instructed to prick Paige’s finger 3 times a day for 3 days to see if her body needed insulin shots to help her grow.
To our surprise, our typically compliant Paige refused to stick out a finger! Brooke bravely showed big sister it was no big deal by offering up 2 fingers of her own, and Paul and I let Paige prick our fingers to her heart’s content...but to no avail. Day after day Paige sobbed, “I am afraid of needles. I don’t want to know if I have diabetes.”
Out of sheer desperation, I finally said, “Paige, you have a choice to make. You can choose to fight CF—which means you are going to have to do hard things—or you can choose not to fight. If you choose not to fight, CF will win.” After a minute of silence, Paige whispered, “Will you help me fight?” I solemnly nodded and said, “You have hundreds of people helping you fight.”
Paige saw about 500 of these helpers come together at our WITH ONE BREATH event at O’Gara’s this past March. To Timron Precision Gear, Walters Recycling and Refuse, and King Lumber Company, thank you for sponsoring our event and directly funding CF research dedicated to finding a cure for more than 30,000 people in our nation.
To all of you that donated an item, made a monetary donation, volunteered, played music, or attended our “new” event, thank you for showing Paige first hand she will never have to fight CF alone.
After 3 days of pokes and normal blood sugar readings, we discovered an untreated staph infection in Paige’s lungs was causing the weight loss; not CFRD. It only took a round of antibiotics to get her weight back on track. While her fear of needles remained, Paige stopped worrying about getting diabetes a few days after the event. While helping me count the $45,000 you generously donated for CF research, she said in a matter-of-fact tone, “Mom, I bet there will be a cure for CF soon.”